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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast cells of 2.9%. Also, 3 acquired mutationed genes. I was told that we would monitor my blood. I wanted to look for others that have also been diagnosed with this and hopefully learn more about MDS.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
i have been living fullfiled life untill I have not been diagnosed mds in December 2024. My personal fight and new challenges have started there finding out new disease unkown before MDS. I have start…

Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and pla…

Patient Advocate
My journey with the MDS Foundation began 17 years ago, during a time of uncertainty in my life. I had been working for a major car credit company for 18 years, and when they decided to relocate, all e…