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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
i have been living fullfiled life untill I have not been diagnosed mds in December 2024. My personal fight and new challenges have started there finding out new disease unkown before MDS. I have started first cycle of Azacitidine 3 weeks ago and so far my overal heath has been declining. MDS is very challenging disease and I would like to share personall and other people experience in order to improve life balance and health!
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was surprised when my general practicioner left me a message saying he wanted to speak with me. When we did speak, he said it looked like I was anemic - he ordered another blood testvto confitm. Sur…
Patient
i was sent to a hemotologist after a routine cbc test from my primary care doctor back in 2015 because my platelets were iver 600. i was placed on hydroxyurea and took it for 7 years with different …
Caregiver
My dad was an athlete, a family man, and a man of faith. He played hockey and ran road races well into his 70s, and he lived every day with generosity and humor. In his later 70s, he was diagnosed wit…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.